Sunday, February 15, 2009

Selling your home...

**Sigh**

Where do I even start. I need to vent.

I hate it when my parents decide to sell the house. We are doing it again...and we are going on our 6th week of being on the market. Usually my parent move every 4-5 years and bank about 200,000-300,000 each time. This time, we have lived here almost nine years and we are looking to bank about 600,000 to 700,000 this time around. It's been tough though...

I hate open houses. It forces me to keep my room clean each day and to make my bed every morning because you never know when someone is coming to check out the house. I have to hide everything that is of some worth to me so no one will steal it...(i.e. hide all wii games, controllers, lap tops, computers, etc.). If we are going to have a open house (like we have had for 6 weeks straight), it forces me to waste one day of my two days off to clean the house so it is immaculate for the open house. Grrr...

Then you have to find something to do during those 5 hours that the open house is going on. It gets so boring...you can only go to the movies so many times. Then there are the realtors that show up with their clients the moment you get home after work and don't even tell you they are bringing a client.

Then there are the bogus offers. There is a reason why we have $1,270,000 FIRM on the listing. Don't give us a low ball offer of one million and expect us to take it (at least not right now). Now there is an executive from Black and Decker (one of our big competitors at work...so every time she comes over, I have to hide all my work stuff as well...sigh)....back to this lady...she is being transferred from North Carolina and wants to make a offer on our home but has 2 other homes on her list too. So we are anticipating on getting another offer this week. I am praying that we get the offer and not the other homes. And please lady, offer somewhere around 1.27. So this misery can stop and I can go find my new home.

The plus side to all this though is the following:

A) we get to start a new adventure
B) mom and I get to design a whole new home
C) I get to design my new bedroom (yay)
D) there is a chance that we can rent a beach house during the summer this year. Dad is open to the thought of renting a place on balboa island until we find the right home.
E) the next home might be a flipper...which means that if the next house is crap...we might move out of soon.

We looked at a home in Foothill Ranch today during our open house. The house was a foreclosure and bank owned. It had potential to be worked on and flipped. It was kind of exciting to actually look at homes. The rat turds in the carpet was a nice added touch to the house...just lovely. Let's just say, if we do eventually buy that home, we need to get a rat exterminator before we move in.

We had 43 people look at the house this week. 3 sets of couples came back more than once. 2 came back twice. And the Black and Decker lady came with her husband 3 times and spent 2 hours each time in our house. Buy the damn house people!!!

The market is definitely picking up. All I have to say is that we need to sell this bad boy soon or I am going to go nutty!

I will keep you all posted...especially if we get an offer this week!!

Wednesday, February 11, 2009

Memories...

Leave one memory that you and I had together. It doesn't matter if you knew me a little or a lot, anything you remember! Don't send a message, leave a comment on here. Next, re-post this in your notes and see how many people leave a memory about you. It's actually pretty cool (and funny) to see the responses. Repost as "memories".

25 Things

Rules:Once you've been tagged, you are supposed to write a note with 25 random things, facts, habits, or goals about you. At the end, choose 25 people to be tagged. You have to tag the person who tagged you. If I tagged you, it's because I want to know more about you.(To do this, go to "notes" under tabs on your profile page, paste these instructions in the body of the note, type your 25 random things, tag 25 people, then click publish.)



So I have been tagged in 9 people's notes regarding this one topic ("chain-note") so I decided that I am going to do one and one...and I am going to do it in my blog so I kill a 'few birds with one stone'. So here it goes...and these are in no particular order...



1. My favorite movie ever is Dirty Dancing. I LOVE IT!!! I have probably seen it 20 times or more (all the way through too). When I was younger, I would always try to convince my parents that we needed to go to a family resort just like Baby and her family. And my favorite quote from the movie is, "Nobody puts Baby in the corner" and my favorite song (well, it is actually a tie) "She's like the Wind" and "Overload" (by Zappacosta)...which most people don't know but I really love it! And sadly I can sing every song off the CD from memory and I always have the CD in my car (so sad!).

2. With the help of Tivo, I have the lamest addiction to "reality" TV shows. The Bachelor, ANTM, Jon and Kate + 8, Little People/Big World, Real World, Celeb Rehab/Sober House, The City, The Hills, Project Runway, Top Chef, Kitchen Nightmare, etc. etc. etc....it's pathetic and ridiculous but I just can't stop the addition!

3. I am secretly in love with Simon Baker. The Australian accent, the curly blond hair...it gets me every time. He is sooo cute. Too bad he is married!

4. I have this "creepy" relationship with my doctor...and when I say "creepy", I mean "creepy". When I was younger, I would dread going to the doctor. Now I see one every 2 months and I talk to my PH doc at least 1-2 times a week. To me...that is "creepy". But when you have the dumbest disease ever with no cure, what do you expect? I have 2 Rheumatolgists (Dr. Furst and Dr. Charles,UCLA) , a Pulmonary Hypertension Specialist (Dr. Rajan Saggar), a secondary Pulmonary Hypertension Specialist (Dr. Shapiro/Dr. Ross), a third Pulmonary Hypertension Specialist (Dr. Rajeev Saggar- Rajan's little bro) a Cardiologist (Dr. Kean UCLA), a primary doctor (Dr. Rokhshadfar) and a secondary doctor (Dr. Trihn), a case coordinator (Anne-Marie Harvey) and a transplant coordinator (Stephanie Lackey UCLA). And then there is my team at my Pharmaceutical provider, Accredo (the list just gets longer). The saddest fact is that my medical file is 6.3 inches thick (yes, we actually measured it last time) and someone's sole job at Blue Shield is to work only on my medical case. Her name is Anne-Marie Harvey and she's the best. She probably knows more about me than I do...ha ha ha...

4. I get paid about $363,000 a year at Hampton. Yes, it's true. With my medical benefits and my two 401K plans...I really can't lose my job! I have a life insurance policy, a 401K plan, a great HMO (with specialist access for free--thank you Dr.Saggar and Anne-Marie!), a awesome dental plan, a special insurance that allows me to have a nurse at my home 24/7 when I need one. Its a extra 10 bucks a month. It's well worth it if you have a terminal disease like myself. Especially if my parents still have to work, when I can't and I need assistance when they are gone. Every year I get a account "summary" from Blue Shield. Here is what my bills kind of looked like the past 2-3 years and I only had to pay 2-3K total. You will see why I can't lose my job!

Heart Cath (one done in 2005 and another done 2007)- $52,000

26 days in ICU fourth floor at UCLA- roughly $427,000

2 weeks at UCLA and 2 weeks at Saddleback Hospital for line infections-$86,000

2 Hickman Catheter insertion surgeries at UCLA-$32,000

2 PICC Line inserts-$12,000

2 Hickman Cath removal Surgeries-$17,000

4 years of Remodulin- 2 bottles of Remodulin per week ($10,000) x 4 weeks x 12 months x 4 years=$3,840,000

Saline, syringes, needles, tubing and 2 pumps for Remodulin (each pump is $10,000) x 4 years= $460,000

Pills (Lasix ($14,400) , Revatio ($86,000), Ultram ($51,840), Postassium ($20,160), Digoxin ($24,750))=$197,150

And I haven't even hit the appointment fees for all my docs that Blue Shield pays for...Dr. Saggar alone gets $200 bucks for every 15 minutes. Yikes...

So no, I can't loose my job!

5. I love to travel. The only problem is most of my income goes towards my car, medical co-pays, shopping...that I don't have much dinero for travel. But I started a travel savings account that pulls from my paycheck every time and I have 1k already saved up for my next destination.

6. I get irritated really easily. Slow drivers in the fast lane, people who ask thousands of questions, people who show up late, people who are lazy, people who never work...all irritate the hell out of me. Especially people who live off of the State. Umm...I pay my taxes to pay for your booty...grow up and get a job and also, don't have more kids than you can afford or pay attention to (hello octa-mama and others!!).

7. My mom says that I have this weird habit of getting interested in something (i.e. knitting, wii, a car) and I am obsessed with it for like 2-3 weeks and then I move onto something else. What's strange about that?...lol

8. I got better grades in college than I did in high school. I guess I learned my lesson.

9. I have "only child syndrome". I like to be by myself most of the time. I excel at video games and arcade games. I hate sharing. I rely on nobody. I am extremely independent and I probably will never live with roommates. I will be lucky if I get married....who wants to deal with relationship drama??

10. I have never done any drugs that are illegal or even smoked a cigarette once. I think it is disgusting. Yet I am on the heart and lung transplant list. Figure that.

11. I love water...I used to swim 2-3 times a week. Now I can't even take a "real" shower because I fear that I will get another line infection from water.

12. It is estimated that about 25,000 people in the world have Pulmonary Hypertension. I am one of them. Seeing that there are BILLIONS of people on Earth, that is a very rare disease.

13. Dr. Saggar says that I should have a tubal ligation (permanent birth control) because I can't have kids having PH. The pill increases your chances of having blood clots due to hormones which can be deadly for me. I am hesitant to do it because I still want to believe that eventually they will find a cure in time and I will be able to have my own kids. Surrogacy and private adoption is always on my mind too. I don't think I will be able to do normal adoption because of my status on the transplant list. The real question is whether I will be able to afford all this?? Till then Ayden will have to be my wanna be child. =)

14. I have learned that my parents are right. All the time. Regarding everything. I think it is due to old age...I mean "experience".

15. I love to decorate...numerous people think I have some kind of talent in it and I think I am pretty good at it. I actually got to decorate our office at work and everyone loved it.

16. I love photography. I don't think I am as good at it as people think I am but I still love taking photos. If I am doing something...my camera is no far away.

17. I am a awesome party planner. But I never do it enough! =)

18. The best date I ever went on was a mini weekend vacation to Santa Barbara, where we got lost on the way up, talked the entire way up, he stopped any place I wanted to take a photo and we stayed in a private home on the beach in Pismo and he cooked EVERY meal while we were there. It was awesome.

19. It do better in small groups than larger groups. I hate talking in front of people. Most would never know that though.

20. I am constantly looking for a home to buy. I would like to buy a beat up Joesph Eichler Home in Orange and redo it in a contemporary style that fits the 60's era that the homes were built.

21. I definitely believe that life experiences=your level of maturity.

22. I love my friends and family like no other. They are my ultimate support group.

23. I love my car. It was the most expensive thing I have ever purchased. It might have been extremely expensive but was worth every dime. I saved my butt off for it and I worked Longo Lexus like no other. 10K off the fleet price (my mom retired from Toyota in 1990 so I got her discount on top of what I worked off)...I think I did a great job at lowering it's price!

24. I love dogs. Only small furry ones though. I have had one dog in my life and it lived 19 years. Oh and by the way, I am allergic to cats AND dogs. Figure that.

25. I would rather give than receive. I hate it when I get presents but I love giving others presents. Especially kids. And I always think about the gifts I give. They usually are unique, or homemade, and usually trigger some memory of a good time for the recipient. I always put a lot of time and effort into them. Here's a tip: How it is wrapped is half of the wow factor!













2.

Sunday, February 1, 2009

I got tagged...

I am - dying to go on a vacation with friends and not have my parents there! (and not have my mom worry that something is going to happen to me...)

I want - a wii (thanks Rachel for getting me addicted!)

I hear - drama from people all the time and it annoys the hell out of me. Why do you people put yourselves in these situations!?!

I work- all the time, even when I don't have to...

I travel- less than I want to...

I often- feel sick to my stomach literally from all my medications but I won't say anything because nobody likes a whiny woman!

I wonder - if some people will ever grow up...

I learn- new things everyday...somethings are useful somethings are just mindless clutter...

I eat- very little, but always gain weight...and I hate it!

I take- photos all the time...because I want a way for myself/my parents/my friends a way of remembering the good times when I am no longer here...

I usually - do the same thing day after day...isn't that boring? But I get paid to do it so I don't care.

I search - for new information about Pulmonary Hypertension all the time...even when I shouldn't (i.e. work)...I think its an obsession...

I am not - as confident as other's think I am.

I dance - terribly and I HATE doing it...

I wish - I was able to have my own kids...because I don't think I will qualify for adoption or have enough money for a private surrogacy...

I go nutty- when people say one thing and do another, cause drama when they don't have to, get into a unhealthy relationship when they shouldn't, drag their kids though unhealthy relationship, continue to be in relationships that are obviously not healthy or productive.

I get angry- with stupid people. Don't drive in the fast lane if you are going under the speed limit. Don't get pissed at me when YOU cross the solid white line and cut me off causing me to get angry and tailgate you.

I rarely - doing anything for myself and would rather do stuff for others...but I am going to change that this year!

I miss- having a dog...

I think- I should have boyfriend by now and I really wish I did but I don't think that it is fair to have a guy fall in love with me and then I get really sick and die. It's just not fair...

I cry - rarely...

I get pissed off- when people lie and don't think I can see right through it (I can detect bullshit a mile away) and don't think I don't know it...

I can't- do everything I wish I could..

I am not always - truthful...I tend not to say things that bother me in fear that I will hurt some one's feelings.

I lose - stuff all the time...and I hate it...

I fear - the Hospital all the time/that Remodulin will stop working one day/ that my IV line gets infected (again...)/ that something happens to my IV line...there is too much to list...

I'm confused - as to why, out of 20,000 people who have PH in the world...why do I have to have it?

I need - to get a will so I can make sure that my parents get my life insurance policy when I die (am I the only 25 with a life insurance policy?)

I should - take it easy/take more PH drugs...but I don't want to live my life taking 20 something pills each day...

I dream - about nothing...because I wake up due to sleep apnea due to my PH...

I hate- that some people don't have to work for anything and yet still survive, while at the same time I have to work all the time just to survive (literally)...

I remember- very few things because it is a side affect of some of my drugs...

I really- want to get married one day and have kids but I don't think that will happen.

I have - goals and ambitions but I know most likely I won't live long enough to accomplish them all...

I hide- lots of stuff (especially from my parents) like how I feel about things, how I am physically feeling, test results, etc. so I don't scare the people around me...

I know- that I am sick, and I feel sick everyday, even though most people can't tell and I don't say anything...

I think- people don't realize how good they have it/ people whine too much/people really don't know how hard life can get unless they go through something extremely traumatic.

I am- the youngest of most of my friends but I think I am the most mature because of what I have gone through already in my life...

I dislike- A. messy homes/rooms/bathrooms...yuck! B. People who argue with others because 1)they just like to hear the sound of their own voice 2) they always think they are right 3) they love to argue 4)they have to always prove themselves C. People who try to act like they are smarter/better/wiser than they really are D. Fake people E. Lazy people F. People who waste money on things that are pointless when they really need to spend it on more important stuff. G. People who can't get their life together when other's depend on them.

I regret- that I didn't go away to college/doing more during college (i.e. study abroad, travel, take "fun" classes like photography, pottery, etc.)

I love - my family and friends and my little godson more than anything else in the world...


My Bucket List...


Ever see the movie "The Bucket List"? I would like to knock some more things off my bucket list this year. Last year I killed quite a few (go to Europe, ride a high speed train, stand underneath the Eiffel Tower, ride in a pod on the London Eye, go to my first PH conference, start my 401K, etc.). So here is my partial and forever growing list for 2009, I might not get to it all but I can always try. These are in no particular order...


- Take a cruise with best friends though the Caribbean (in particular, the Southern Caribbean).

- Live to my 26th birthday

- Go to the Aquarium of the Pacific
- Go back to the San Diego Wild Animal Park

- Go back to Sea World

- Go back to Julian for apple/pumpkin picking

- Drive up to San Fran/Sonoma

- Drive to the Grand Canyon and stand on the rim

- Go to the annual Eichler Home tour

- Go to the 2009 PH midway-to-conference on the road tour in San Fran

- Go back to Hawaii

- Find a new home! (which requires us to sell our old one)

- Decorate my new room once we move using my "metropolitan home" as my inspiration

- Enter photos into the OC fair again (but this time win!

- Do group xmas photos again in Laguna Beach (they came out so well last year)

- Make another 12 payments on Mona (my Lexus)

- Get a raise at work (no matter how small it is!)

- Apply for my Master's in Marketing (based on whether Saggar gives me the ok to go back to school and work at the same time).

- Go to Joshua Tree for the first time

-Finish knitting Ayden his blanky (half way there!)

- Master Photoshop (or at least learn some new tricks on it...)

- Come up with a battle plan with my financial advisor on how to buy a place of my own

- Get Saggar to say it is OK to live on my own...

- Continue to live my life the way I want to and not be pressure to find a boyfriend in order to be "happy"...I say screw that...if he comes into my life so be it...but I am only 25 and I am not rushing out to get married just to say "I'm married"...foolish young people getting married now...

- Try to solve/address my Sleep Apnea issues due to my PH

- Try to get back on Revatio

- See a massage therapist

- See a chiropractor

- Solve my liver issue (aka go see Saggar's Liver specialist)

- Research genetic testing on PH and see how I can get a DNA test to see if I a connective tissue disorder, if I have primary pulmonary hypertension, or if I have PH from something else.

- Meet at least one new friend and one new PH friend

- Take Ayden and the boys to the beach this summer (and pray that Ayden doesn't eat the sand)

-Go to another Angels game

- Host at least one party this year

- Go see a play up in LA

- Treat myself to one thing each month that I want, no matter how big or small it is...because I deserve it...

- Learn more about photography and enjoy every second of it...
- Get at least one new lens for my Rebel XTi
- Create a online cookbook of all my mom's recipes that I enjoy so that I have them to keep for as long as I live
- Investigate adoption/private surrogacy for the future so I can incorporate it in my future
- No line infections!
- Expand my photography portfolio
- Participate/Co-Host at least one PH fundraiser
- Buy a Wii
to be continued....

Chit Chat with Dr. Saggar

So Saggar gave me a call this week...I needed to vent to him regarding my crappy week I had and of course the man had to call right in the middle of one of my favorite shows "The Mentalist". So Saggar said that he spoke to the heart/lung transplant team about my file the other day because my case number was up for review. He told them my progress and gave him the latest results of my blood work and my heart cath I had done earlier in the year. In return he gave me a nice little Christmas present (it was a tad bit late but I still accepted it...lol). So he mailed me a disability form for the DMV so I can get a handicap placard for my car when I am having more crappy days or I get stuck at a concert or something and I can't walk that far to my car. My eyebrow raised...wow, a plus side to this disease from hell. I think that is the one and only plus side to this disease. So in order to get it, you have to have your doc sign it saying that you have class 3 or 4 heart failure (bingo!), you have to stop to catch your breath (nah...), you have permanent lung disease (bingo!)...so I hit 2 out of the 10 different things you can have (missing limbs, COPD, etc). Saggar said his wife (who lost their twins in August) was going through another round of in vitro next month and he said his little brother (the other Dr. Saggar) was driving him nuts. Little Saggar is his fellow this year and he said that he loves his brother but he spends way too much time with him. I told him that his brother is better than the other little twit that he has in there that drives me nuts. She looked like she was 12, and asked the stupidest questions (So why are you here? Duh, I have PH... Do you show any symptoms? Duh, ya! Are you on the transplant list? Duh, ya...look at my file woman...its 6 inches thick but you could quickly read it!) OK back to the story... So I went to the DMV on friday afternoon. Since they have closed the DMV on Saturdays, Fridays are now packed but it was the only time I could go since I get off at 4 and I only get an hour lunch. So my boss Kim let me leave work early since they are re-doing our computer systems and there is nothing we can do until it is back up and running. So I bulleted down Lake Forest and jumped in line. Almost 2 hours later I came back home with placard in hand.

Of course the first thing out of my dad's mouth was, "Now I don't want you using that unless you are having a bad day, or you're at an event and you have to park far away, or if the parking lot is completely full". Um...duh! I am not going to deny a poor old man a spot when I can walk it. But I am sure as hell going to use it when I can't find parking! So that was kind of exciting. Then I get an application in the mail on Saturday from Saggar for a discount on my energy bill...eyebrow raises again... wow...another plus... I get 30% off my electricity bill and protection from blackouts because my IV medication has to be refrigerated all the time and if the power goes off the medication spoils. Then during the winter I run the heat all the time so I don't get sick. And during the summer I run the AC all the time so my breathing is easier...plus my body tends to shut down in high heat... So that was great news too...because that would same the fam about 2K a year...which is awesome since dad very little work coming in. So ya... I had some perks actually happen this week! Work is picking back up though...we have a chance of getting 8 more feet of retail space at Home Depot and we are buying another company next month so we are really going to start rolling! Oh and I have 10 trade shows that I have to plan for in the next 2 weeks. My favorite being in Vegas at the beginning of March. So watch out Vegas because I'm comin'!

I am such a slacker...I know!

(I originally wrote this post 3 days again...)

OK, it's a Friday night and I am at home doing this! What is up with that? Could be the 11 hours of work I did today...

...or it could have been the 150 people Chinese New Year party that mom and I hosted at work today...
...or it could have been the 3 Home Depots I went to looking for competitor product for our new account...
...or least of all, it could have been the one hour twenty minute line that I stood in at the DMV (enough said).

So ya, I am pooped...beyond belief...and the past few days (really the past week) has been full of "bad days" health wise...I thought I had the flu, then I thought I might of had a line infection, then I was just really tired. I dunno, maybe I just wore myself out...so I went and took a blood test to make sure that I didn't have an infection that I didn't know about (blah blah blah)...so like usual my liver enzymes were a tad high but lower than usual (probably do to my new Milk Thistle regimen)...but my BNP was high!! That isn't good and Saggar won't be happy to see that. For those of you who don't know what BNP means here is the definition below: A brain natriuretic peptide (BNP) test measures the amount of the BNP hormone in your blood. BNP is made by your heart and indicates how well your heart is working. Normally, only a low amount of BNP is found in your blood. However, if your heart has to work harder than usual over a long period of time, such as from heart failure, the heart releases more BNP, increasing the blood level of BNP. The BNP level will drop when treatment for heart failure is working. Eek! Ya...now lets come back to reality...4 years ago, my BNP was off the charts (like in the thousands=your dying) and then dropped under 100 (which is normal) after I got treatment...but it is slightly high again...grrr! I think it is took much stress on my heart=too much stress in my life! So that kind of freaked me out... Then I looked at my carbon dioxide...it was low! That is probably from the Lasix though... My red blood cell count was high... (due to the transfer of extra oxygen to my lungs) My Hemoglobin was one point too high (again due to extra oxygen transferring throughout my body... Twice this week I woke up with heart palpitations during the middle of the night... So it looks like my heart failure might be causing this "sluggish" feeling that I have had all week. I think it is time for a vacation... Ok that is my medical update for the week...