So Saggar gave me a call this week...I needed to vent to him regarding my crappy week I had and of course the man had to call right in the middle of one of my favorite shows "The Mentalist". So Saggar said that he spoke to the heart/lung transplant team about my file the other day because my case number was up for review. He told them my progress and gave him the latest results of my blood work and my heart cath I had done earlier in the year. In return he gave me a nice little Christmas present (it was a tad bit late but I still accepted it...lol). So he mailed me a disability form for the DMV so I can get a handicap placard for my car when I am having more crappy days or I get stuck at a concert or something and I can't walk that far to my car. My eyebrow raised...wow, a plus side to this disease from hell. I think that is the one and only plus side to this disease. So in order to get it, you have to have your doc sign it saying that you have class 3 or 4 heart failure (bingo!), you have to stop to catch your breath (nah...), you have permanent lung disease (bingo!)...so I hit 2 out of the 10 different things you can have (missing limbs, COPD, etc). Saggar said his wife (who lost their twins in August) was going through another round of in vitro next month and he said his little brother (the other Dr. Saggar) was driving him nuts. Little Saggar is his fellow this year and he said that he loves his brother but he spends way too much time with him. I told him that his brother is better than the other little twit that he has in there that drives me nuts. She looked like she was 12, and asked the stupidest questions (So why are you here? Duh, I have PH... Do you show any symptoms? Duh, ya! Are you on the transplant list? Duh, ya...look at my file woman...its 6 inches thick but you could quickly read it!) OK back to the story... So I went to the DMV on friday afternoon. Since they have closed the DMV on Saturdays, Fridays are now packed but it was the only time I could go since I get off at 4 and I only get an hour lunch. So my boss Kim let me leave work early since they are re-doing our computer systems and there is nothing we can do until it is back up and running. So I bulleted down Lake Forest and jumped in line. Almost 2 hours later I came back home with placard in hand.
Of course the first thing out of my dad's mouth was, "Now I don't want you using that unless you are having a bad day, or you're at an event and you have to park far away, or if the parking lot is completely full". Um...duh! I am not going to deny a poor old man a spot when I can walk it. But I am sure as hell going to use it when I can't find parking! So that was kind of exciting. Then I get an application in the mail on Saturday from Saggar for a discount on my energy bill...eyebrow raises again... wow...another plus... I get 30% off my electricity bill and protection from blackouts because my IV medication has to be refrigerated all the time and if the power goes off the medication spoils. Then during the winter I run the heat all the time so I don't get sick. And during the summer I run the AC all the time so my breathing is easier...plus my body tends to shut down in high heat... So that was great news too...because that would same the fam about 2K a year...which is awesome since dad very little work coming in. So ya... I had some perks actually happen this week! Work is picking back up though...we have a chance of getting 8 more feet of retail space at Home Depot and we are buying another company next month so we are really going to start rolling! Oh and I have 10 trade shows that I have to plan for in the next 2 weeks. My favorite being in Vegas at the beginning of March. So watch out Vegas because I'm comin'!
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