I saw this on the PH message boards...I find it very interesting...especially for those of us who fear line infections from IV or site pain from Sub-Q...I wonder if UCLA is in on the trial...if anyone hears how this goes or is part of the study, can you let me know how it goes? Thanks!!
My doctor told me at my visit that in August they will probably be starting a trial using an implanted pump for Remodulin. It will be the stage one safety study and 10 PH centers will be participating.All I can tell you is that the pump would be implanted in the abdomen and it would be refilled once every 3 months by a PH nurse from Accredo, Caremark, or at the PH center. It would have an internal catheter going directly to the heart, similar to IV. However, there wouldn't be the risk of being dislodged, site infections, or pain that exist with the current pump delivery systems. Forgive me if this has been posted before, but I haven't been on the boards for months and I don't feel inspired to go back and search. If anyone knows more about this new pump method please feel free to chime in.
I wonder what the risks are for this "implanted" pump...hmmm...I would also like to know the study name for this...
1 comment:
Hi lIndsey I just found your blog I did not know you had a blog this is wonderful makes me want to do the same, but scared of putting personal information online you know what I mean?
I would consider going into this trial as i am on the sq remodulin. ttyl
Alma
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